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There will be a benefit Foxhunt for Haley Duffer on April 16, 2011 at Joe Lewis' Fox Preserve, 1586 Fort Hill Road, Lawrenceville, VA. This will be a one
class, Speed and Drive Hunt with 15 places. The entry fee is $25.00 per dog. Call Calvin Clark at 434-210-1281 for numbers.
Registration will be from 7:00 PM until 11:00 PM on Friday night, April 15, 2011. Running of the hounds will be from 6:00 AM until 11:00 AM on Saturday, April 16, 2011 with judging and awards presentation afterwards.
If anyone wishes to make a donation to this worthy cause, even if you do not have hounds, you can call and reserve numbers in your name. All proceeds from donated numbers will go directly to Haley.
On Saturday, April 16, 2011, breakfast will be served from 6:00 AM until 8:00 AM and lunch will be served from 11:30 AM until 2:00 PM. Proceeds will go to Haley.
Trophies will be provided by Red Fox Hill Fox Preserve managed by Calvin and Brad Clark.
We would also like to thank United Eastern Dog Hunters Association and Canines for Cancer for the generous donations they have made for Haley.
From the "Hope for Haley" Facebook page: http://www.facebook.com/hopeforhaley
(Please "like" this page to show your support!)
"Three year old Haley Duffer, daughter of Harvey and Rhonda Duffer of Chase City, was diagnosed at Duke University Hospital in December 2010 with a rare genetic disorder called Leukodystrophy.
Leukodystrophy is an autosomal recessive genetic defect. This means that both males and females can carry the gene but both parents need to carry the defective gene in order to have an affected child. This disorder is very rare and is estimated that the carrier defect occurs in the general population at 1 in every 100 people and the affected birth rate is 1 in every 100,000.
A person that is affected with Leukodystrophy has a lack of enzyme in their blood without this enzyme, sulfatides are not broken down and instead build-up in the white matter of the brain and the central nervous system causing destruction of the myelin sheath. Without an intact of myelin sheath there is a breakdown in communication between the nerves and the brain. This breakdown will eventually cause Haley to lose such functions as the ability to walk, speech, paralysis, blindness, seizures and then death.
This disease progresses rapidly and there is very little treatment. There is no cure, only hope that one day a cure will be found and it’s not too late for Haley.
Haley’s parents would like to extend their deepest appreciation for all the love and prayers they have received throughout their community. This has been a devastating diagnosis but we do believe in miracles."