Welcome to the message board forum for Krukenbergs Spindle and Pigment Dispersion Syndrome.
Here you will be able to post messages or reply to messages posted by other people... share your experiences of PDS or Krukenbergs.
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Welcome to the message board forum for Krukenbergs Spindle and Pigment Dispersion Syndrome. Here you will be able to post messages or reply to messages posted by other people... share your experiences of PDS or Krukenbergs. |
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| Author | Comment |
Joe
IP: 131.122.39.249 Apr 1, 08 - 4:31 PM |
PIGMENT DISPERSION SYNDROME and PRK
I had my one month PRK follow-up appointment early this morning (it's been about 5 weeks since the procedure). I was told that my visual acuity is really good as I am seeing almost 20/15 in both eyes. About 2 weeks ago, I poked myself in my right eye with my eye drop bottle. That healed normally I was told. I am in no pain and I have some dryness in my eyes after I wake up in the morning, which the doctor said is still normal with the PRK procedure. Anyways, he asked me if I had ever been talked to about "Pigment Dispersion Syndrome." I told him no, and he said that he thinks that I have it and went on to explain to me what it was by showing me a picture of the anatomy of an eye, and describing what the syndrome was. The doctor told me that he wanted to use some sort of a lens on my cornea to act as a "mirror" to see some part of my eye, but didn't want to do it just yet as my cornea is still healing from the PRK surgery. He also wanted me to do some other tests that I made appointments for in the near future. Now, is this feasible? That the syndrome would come up so quickly? OR could his "diagnosis" be a little off? I have seen about 5 different eye doctors in the past 6-8 months as well as the extensive tests before my PRK surgery. On a side note, I also thought I had complications from the PRK surgery, so I went in for a thorough exam a week after the PRK procedure and was just told that I was healing properly and not to worry about a thing. So, nobody had mentioned it, and it seems like something that would have sparked some interest in at least one of my eye doctors. My IOP (i think that's what it's called) have all been stable and normal from every documented test that my eye doctor had (about 3 years worth of checks)... so, again, could this be anything else? My only other alarm about this being something different, was today, another student at my school was "diagnosed" with the exact same thing from the exact same doctor. Huge coincidence from a very rare disease. Any help would be appreciated. -Joe |
Dave
IP: 193.62.251.16 Apr 2nd, 2008 - 1:57 PM |
Re: PIGMENT DISPERSION SYNDROME and PRK
Ok, lots of stuff to talk about. The "mirror" is a gonioscopy lens and is used to examine the anterior drainage angle which is where the iris and cornea meet. This is where the pigment ends up in Pigment Dispersion Syndrome and it is absolutely right that it to be examined. I'd also avoid putting any extra stress on your cornea at this time. So far so good. Firstly, lets clear a couple of things up. PDS is not a "very rare" disease. It has a prevalence of around 2% in Caucasians (which is what I assume you to be). This is higher than was thought in the past, mainly because only the more advanced cases were picked up in the past. Secondly it is often more severe & therefore noticeable in short sighted males. Again this is what I assume to be. Thirdly, PDS does not come with a raised Intra-Ocular Pressure. That's what PDS can lead to, along with loss of peripheral vision but then it is referred to as Pigmentary Glaucoma. Now, as to whether it was missed in your previous eye exams or mis diagnosed in your most recent one, I can't say. However I would say that mid 20's is about the right age for an early diagnosis. And regarding the "co-incidence" of a fellow student of yours having the same condition is as much evidence for this guy being good as it's being bad. No help there I'm afraid. Hope some of this helps. If not, feel free to post again. David |
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