Welcome to the message board forum for Krukenbergs Spindle and Pigment Dispersion Syndrome.
Here you will be able to post messages or reply to messages posted by other people... share your experiences of PDS or Krukenbergs.
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Welcome to the message board forum for Krukenbergs Spindle and Pigment Dispersion Syndrome. Here you will be able to post messages or reply to messages posted by other people... share your experiences of PDS or Krukenbergs. |
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| Viewing Page 1 of 1 (Total Posts: 11) |
| Author | Comment |
michelle
 IP: 195.137.17.71 Apr 1, 08 - 2:17 PM |
Vision loss in right eye. Is it associated? Newbie here!
I was told years ago I had pigment dispersion but it doesn't affect your sight so no need to do anything. I am now struggling with vision loss in my right eye & as yet the hospital are unable to find any cause. I had an MRI couple of weeks ago & go next week for the results so don't know if there is anything there yet. I went to the Dr this morning for totally unrelated matters & when I mentioned it she looked on my notes & the hospital have it recorded that I have KS (they didn't tell me of course - they are only my eyes!). From what I am reading then this doesn't usually contribute to vision loss - am I right? Look forward to some help!! Thanks Michelle |
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Dave
IP: 193.62.251.16 Apr 2nd, 2008 - 1:33 PM |
Re: Vision loss in right eye. Is it associated? Newbie here!
Assuming this isn't a rather poor attempt at an Aprils Fool prank, he's an overview. Pigment Dispersion Syndrome is condition which predisposes you to a disease called Glaucoma. This can cause visual loss. However, an MRI is very very rarely performed when the suspected disorder is Glaucoma. It is almost never required to make a diagnosis. I don't know but it sounds like you are very aware of poor vision, especially when you close the L eye. This is not the picture of glaucoma. I will refrain from commentating on what you are more likely to have. It sounds like the correct investigations being performed in any case. Hope this helps. If you have any further questions, feel free to post again. Dave |
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michelle
IP: 195.137.17.71 Apr 2nd, 2008 - 1:38 PM |
Re: Vision loss in right eye. Is it associated? Newbie here!
No it certainly is not an April Fools joke. My vision of field is fine, my pressure is fine, everything else is fine - as far as they can tell. Only thing wrong is that my right eye is very blurred. The opticians can't seem to correct it as it doesn't seem to make any difference whatever strength of contact I have in. I get the MRI results next week & if nothing shows from that then I think the next step is electrical tests to check if the optic nerve is working properly. Is glaucoma the only way KS will cause vision loss then? |
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Dave
IP: 193.62.251.16 Apr 2nd, 2008 - 2:08 PM |
Re: Vision loss in right eye. Is it associated? Newbie here!
Pigment Dispersion Syndrome mainly causes Glaucoma. People with PDS are more likely to have a retinal disorder called Lattice Degeneration which is a predisposing factor for retinal detachment. Glaucoma has few symptoms and very blurry vision is not one of them. Retinal Detachment often has symptoms of flashing lights/floaters in your vision and a black curtain coming over otherwise normal sight. Sorry about the April fool thing, there were a couple of great ones this yr (Virgin/Googles Mars colony was especially funny). Dave |
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michelle
IP: 195.137.17.71 Apr 2nd, 2008 - 2:23 PM |
Re: Vision loss in right eye. Is it associated? Newbie here!
I do see little black dots floating around but that is more in my good eye. I don't get flashing lights, halos etc (except with a migraine). |
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Dave
IP: 193.62.251.16 Apr 2nd, 2008 - 2:31 PM |
Re: Vision loss in right eye. Is it associated? Newbie here!
I should have mentioned that both glaucoma & retinal detachment are relatively easy to diagnose and neither would require investigation by MRI. Your lack of the appropriate symptoms just adds more weight to this. |
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michelle
IP: 195.137.17.71 Apr 3rd, 2008 - 1:49 PM |
Re: Vision loss in right eye. Is it associated? Newbie here!
Yep, will have to wait & see what the MRI comes up with & if that doesn't come up with anything then goodness knows what! I do not understand whay they cannot figure out what is wrong - or if nothing is wrong (which is what they keep saying) they why can't they correct the vision! Will be going on Moday so will post again then. Thanks for your help. PS I do get halos around bright lights when I don't have my contacts in. Hubby bought me a laser star machine but if I look at it a night when I have gone to bed & don't have my contacts in the stars are rings of light & not dots??? |
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Dave
IP: 193.62.251.16 Apr 3rd, 2008 - 2:40 PM |
Re: Vision loss in right eye. Is it associated? Newbie here!
The circles of light from a point source is a classic refractive blur symptom. Nothing unusual. When Halos are mentioned as a visual symptom to watch for they are normally referring to those which are multicoloured and due to diffractive light scatter. As for why the difficulty with diagnosis, I don't wish to speculate unduly. They are looking for a relatively small number of things by ordering an MRI scan. Not a sure diagnosis, more ruling out some options. |
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michelle
IP: 195.137.17.71 Apr 8th, 2008 - 11:40 AM |
Re: Vision loss in right eye. Is it associated? Newbie here!
MRI results yesterday & all is fine. They have basically said there is nothing wrong so nothing we can do you will just have to put up with it! I have another appt with the optician to see if they can do anything. I do not understand why, if there is nothing wrong, they are unable to correct the vision. My pressures are 14 in both eyes. At my insistance they have said that I have KS in both eyes. They weren't going to tell me I had it as it's not important as it does not affect your vision.  [ Only after I pointed out to thenm that it is a glaucoma risk did they agree & then said that they supposed they ought to put me on a 6 monthly checkup because of that. Oooh they drive me mad! I still do not understand why they are unable to correct the vision in that eye when they always have been able to before if there is nothing wrong??? Can anyone else see what I am getting at or is it just me?? |
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Dave
IP: 193.62.251.16 Apr 8th, 2008 - 6:12 PM |
Re: Vision loss in right eye. Is it associated? Newbie here!
I personally think it's a good thing that they didn't find anything on MRI. The list of conditions is unpleasant. You mentioned earlier about electro-physiological tests. Any word on those? |
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michelle
IP: 195.137.17.71 Apr 9th, 2008 - 1:49 PM |
Re: Vision loss in right eye. Is it associated? Newbie here!
Don't get me wrong I'm not saying I wanted there to be something wrong on the MRI. I most definitely didn't. I would just like them to be able to correct the vision somehow! I asked about the electrical tests & they said that they supposed they could do them if I like! I said I only wanted them doing if they thought it was worth doing - didn't really get an answer! I think the plan is to see the optician se if she can do anything to correct the vision & then maybe have the other tests is she can't.
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