Tracy's Message Board Forum

Welcome to the message board forum for Krukenbergs Spindle and Pigment Dispersion Syndrome.  

Here you will be able to post messages or reply to messages posted by other people... share your experiences of PDS or Krukenbergs.


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Eric

50

IP: 82.9.26.121

Jan 1, 08 - 7:18 PM
Xalatan

Just to share some info, I am in good general health but was diagnosed 4 years ago with ocular hypertension after having high pressures (circa 24-30)detected in routine "puff "tests at my opticians. I had also occasionally experienced "halos" around bright lights.
When I was first diagnosed at my local hospital there was no mention of PGS and the doctor I saw seemed to think that I maybe just had thick corneas which apparently can give a falsely high reading. However on a follow up check-up in 2006 (I had moved so was at different hospital)the doctor said that the high pressures (now 26-30) were caused by PGS which I had never heard of.
He told me so come back a year later for a further check up which I did last November and have been prescribed Xalatan but to put in my right eye only
which always seems to have a higher pressure than my left. I'm not sure if this means I'll have to use these drops now for ever?
The whole situation has been something of a surprise for me as neither of my parents are aware of having
PGS and there is no family history of any type of glaucoma.
Dave


IP: 193.62.251.16

Jan 3rd, 2008 - 12:27 PM
Re: Xalatan

Hi Eric,

To try and enlighten you,

Most people with Glaucoma end up on medical management (eye drops) for the rest of their life.

Also there is some evidence that putting Xalatan in on eye reduces the pressure in both. The cause is, as yet, unclear.
This does NOT mean that those with it prescribed in both eyes should stop taking them in one eye!

Pigmentary Glaucoma can be an exception as the amount of pigment released tends to decrease with age and thus the intra-ocular pressure can drop later in life. As you'll be undergoing regular follow up this will be found if it occurs.

Although you are not aware of any family history, PDS is familial, and thus it would be sensible for immediate family to be checked out. Ensure a Slit Lamp examination is carried out (this is not mandatory in England & Wales at this time).

Dave


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