Welcome to the message board forum for Krukenbergs Spindle and Pigment Dispersion Syndrome.
Here you will be able to post messages or reply to messages posted by other people... share your experiences of PDS or Krukenbergs.
Tracy's Message Board Forum
Welcome to the message board forum for Krukenbergs Spindle and Pigment Dispersion Syndrome. Here you will be able to post messages or reply to messages posted by other people... share your experiences of PDS or Krukenbergs. |
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| Author | Comment |
Mark
 IP: 81.156.152.91 Oct 31, 07 - 6:57 PM |
PDS & vascular occlusions
I was diagnosed today with PDS displaying what appears to be the normal signs Krukenbergs Spindles, translumination and specks of pigment on the iris. It came as a bit of a surprise because I have been having regular check ups at the eye hospital for the last three years following a second vascular occlusion (I have had one in each eye) and I had become used to the doctors not being able to find a reason for them. I was 33 when I had the first and 40 when I had the second. The first they said was unusual the second caused them significant concern because it was something they would not expect to see at all at my age and it was quite severe. I had lots of blood tests for clotting etc but these were all ok. Both eyes have healed and I had got used to my regular checks at the eye hospital to see if anything revealed itself proving uneventful. Today proved different and as well as hearing about PSD I was surprised to find I had high pressure in my eyes something that has never shown itself before especially as I had my pressure tested at the opticians three days ago and it was fine. Having read this sight and learned a bit more I cannot help but wonder whether the high pressure was due to the fact that I went for a run before the appointment, I am also now wondering whether the sinusy headaches that for years I often get after exercise which I thought were hydration related could be to do with my eyes. I have sometimes had halo effects when very strenuously exercising. The doctor today was very certain that peaks of pressure will have triggered the vasular occlusions, got a second opinion and has booked me in for laser treatment in each eye to put a small hole in the iris. This all happened very quickly and whilst he explained the condition and how the treatment works and what it would do, no other alternatives were discussed. I am now wondering whether the the possibility that my eye pressure moves with exercise is enough to trigger the treatment, whilst balancing the fact that the primary concern of the doctors is to prevent further vascular occlusions knowing that eventually my eyes will not completely recover. Reading the messages no one else seems to have the combination of conditions. |
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Dave
IP: 193.62.251.16 Nov 1st, 2007 - 12:39 PM |
Re: PDS & vascular occlusions
Ok, we're really getting into some heavy stuff now. I confess that I didn't feel comfortable jumping into this topic so I checked the literature, it turns out it was a good idea (I would have been wrong on at least one thing), and now I feel ready to give an opinion. But first some caveats: You didn't say, and it's possible that you have not been told, what vessel type (artery or vein) have been occluded and where (central, hemi-central branch etc). Regardless of the vascular issue, if you're getting halos (and it's important that they're of spectral colouration) around lights after exercise peripheral iridotomy (the laser procedure you have been offered) is indicated to prevent reverse pupil block (the iris changing shape (which can happen after exercise) causing the Intra-Ocular Pressure to rise, causing halos & potentially damage to the Optic Nerve Head. Now, having given my opinion on whether you should have the surgery, lets talk about vascular occlusions. Raised IOP is a risk factor for Central Retinal Vein Occlusion but not Branch Retinal Vein Occlusion or Retinal Arterial Occlusions. Thus preventative treatment for CRVO in the fellow eye of someone who has already had one is worth doing. However, once one has occurred lowering the IOP can prevent healing & disrupt the vascular balance. As BRVO or RAO (in any form) is not correlated with raised IOP & we have no reason to think treatment is effective I doubt IOP lowering management is indicated in these cases. Not knowing what type of vascular occlusion you have suffered I cannot be definitive but I would strongly consider the surgery to prevent IOP related adverse effects, regardless of vascular considerations. I hope this has been clear, we are in quite complicated territory. If not, feel free to post again for clarification. However, I will be later than I would like replying to further posts on this subject. In half an hour I'm on a train to my little sisters graduation (yes, she is all grown up) so will be away from a computer for a few days. Dave |
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Tracy
IP: 84.67.162.154 Nov 1st, 2007 - 3:12 PM |
Re: PDS & vascular occlusions
Hi Mark, welcome to the site. Just a quick note to say that the headaches aren't recognised officially as being caused by the heightened eye pressure, but on the other hand several people have mentioned on here (myself included) that they've had pain behind the eyes/sinus area after exercise, or at times when the eyes have been used a lot, such as after driving long distances, using the computer all day, etc. Best wishes with the laser treatment, let us know how you got on. (Congratulations to your sister, Dave! Hope the graduation went well.) |
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Mark
IP: 81.156.152.91 Nov 4th, 2007 - 9:58 PM |
Re: PDS & vascular occlusions
Dave, Tracey Thanks for your reply's. The vascular occlusions were vein occlusions and I am almost certain they were central based on the descriptions I was given of them, but I can now ask that question. The eye hospital I am going to is at Burton and they have always been thorough and determined to understand what caused my occlusions. Your answers and this site have helped me have helped me understand what I have been told and I will ask them a couple more questions but I am comfortable that their advise is good now I have digested the news! Thanks again Mark |
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Dave
IP: 193.62.251.16 Nov 9th, 2007 - 10:27 AM |
Re: PDS & vascular occlusions
To clarify Tracey's post, raised Intra-Ocular Pressure is considered a cause of headache. However it is a rare cause and headache is very common (over 99% of people have headache at some point in their lives). The telltale factor, and part of the British Asociation for the Study of Headache diagnosis guidleines, is halos round lights. These are round and multi coloured (as in a rainbow spectrum) due to swelling of the Cornea (clear skin at front of the eye). It is almost always associated with a fixed (immobile pupil) and red eye. Mark mentions halos and exercise (which can bring on acute IOP spikes) but many people do not. P.S. Graduation went well, thank you! |
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