Welcome to the message board forum for Krukenbergs Spindle and Pigment Dispersion Syndrome.
Here you will be able to post messages or reply to messages posted by other people... share your experiences of PDS or Krukenbergs.
Tracy's Message Board Forum
Welcome to the message board forum for Krukenbergs Spindle and Pigment Dispersion Syndrome. Here you will be able to post messages or reply to messages posted by other people... share your experiences of PDS or Krukenbergs. |
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| Author | Comment |
Amanda S
 IP: 86.134.128.190 Sep 26, 07 - 8:43 PM |
Info overload - never heard of spindles before today!
Hello My optician noticed a Krukenburgs Spindle in my right eye today at a routine contact exam. He has asked for a referral to eye specialist in hospital. Please can you tell me what I can expect. I had a detached retina (left eye) a few years ago and have had a buckle repair job & laser treatment. I was told at the time that my right eye retina was a bit patchy and thin in places but consultant adopted the "if it ain't broke don't try and fix it" approach, for which I was very grateful. So I am familiar-ish with dilating drops, puffs of air, blinding sunlight after appointments etc etc but am a little worried that my right eye is going to need surgery too. I am extremely squeamish about eyes also which does not help. Am quite short sighted -6 L, -5 R and my night vision is pants, patchy spots of vision in both eyes, floaters and red eyes most of the time. I'd really like to know if my eyes sight is likely to get worse again after finally stabilising after 20 years of wearing glasses? I'm 35 BTW. Oh I have hyperthyroidism too, but don't look like a squashed bug. Am I more likely to get cataracts now? Is the detached retina linked to the Spindles? Will I get another detached retina in right eye this time? Does the having Spindles mean that my kids are at risk of glaucoma related eye problems? I am sure many of these questions have been answered in other posts, have spent the last hour reading them but now am overwhelmed with information. Any advise would be most appreciated. Thanks |
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Dave
IP: 193.62.251.16 Sep 27th, 2007 - 9:45 AM |
Re: Info overload - never heard of spindles before today!
Hi Amanda, You've got a few questions, I'm going to try and take them in order but please feel free to reply if you I missed any or haven't made myself clear. A typical UK Hospital Eye Service check for Pigment Dispersion Syndrome involves all the stuff you've had before (reading letters, dilating drops, looking at the back of the eye) but in addition the ophthalmologist will examine the back of your cornea (which is where the Krukenburg Spindle occur), examination of the iris (looking for gaps where pigment has floated away) & looking for pigment in the drainage angle. All of these will happen at the slit lamp (where you put your chin on the rest & the examiner shines a light at your eyes) & the last one requires a drop of local anesthetic and a gonio lens to be placed on the eye. I think Tracey has a picture of this on her site. The ophthalmologist might want a visual field test done (you look straight ahead & respond where small lights are flashed in your peripheral visin) but this will depend on stage of PDS & other factors. Ok, that's quite a lot of information but the rest can be pretty quick fire: Eye sight getting worse: (I assume you mean prescription changes) No, PDS does not change your glasses prescription, nor is central acuity likely to be altered. Cataracts: PDS does not bring on cataracts, but some of the drugs which might be used to lower IOP might. Detached retina: PDS is not directly to Retinal Detachment but both are correlated with being short sighted & through a retinal lesion called lattice degeneration (which is a risk factor for RD). The diagnosis of PDS does not mean you are more likely to get RD in the right eye, anymore than you were before. Familial patterns: PDS, like all pathology has a genetic component. This doesn't mean that everyone in your family is going to get it. But it does mean they should be screened. Although PDs has been found in children as young as 11, most people develop it in early adulthood. Regular eye exams (mentioning the family history to your optometrist) is recommended. Also it should be remembered that PDS does not mean that you are going to get glaucoma. It just increases the risk a bit. Hope this helps. Dave |
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Amanda S
IP: 86.134.128.190 Sep 27th, 2007 - 4:18 PM |
Re: Info overload - never heard of spindles before today!
Hi Dave Firstly thanks very much for your prompt and informative reply. Its was defiantly good to know what to expect at the hospital referral. Also you have put my mind at rest regarding any further effects of having Krukenburg spindles. You definitely know your stuff, I came away from my appointment yesterday only remembering the word spindle and nothing else I was told. No doubt i will be back to this site regularly (which is great by the way) for updates and information when I need to know. Will let you know how the referral goes, which I guess won't be for a while. Its really nice to know you are not alone. Thanks again Dave and 'hello' fellow spindlers. Amanda |
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Dave
IP: 193.62.251.16 Sep 28th, 2007 - 9:11 AM |
Re: Info overload - never heard of spindles before today!
No bother, hope the appointment goes well. Dave |
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