Welcome to the message board forum for Krukenbergs Spindle and Pigment Dispersion Syndrome.
Here you will be able to post messages or reply to messages posted by other people... share your experiences of PDS or Krukenbergs.
Tracy's Message Board Forum
Welcome to the message board forum for Krukenbergs Spindle and Pigment Dispersion Syndrome. Here you will be able to post messages or reply to messages posted by other people... share your experiences of PDS or Krukenbergs. |
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| Viewing Page 1 of 1 (Total Posts: 4) |
| Author | Comment |
Richard Manchett
 IP: 82.35.56.254 Aug 31, 07 - 10:51 AM |
New member
Hello. The other day I was diagnosed with PDS, the Opthalmologist I visited put me straight onto Zantax and that was that, the wole appointment was over rather quickly. Having never heard of the condition I was caught a little off guard. I wasnt equiped with an array of questions to ask and to be quite frank he didnt seem to concerned about the condition so neither was I so I left. Having found this web site, I am now begining to realise what I am facing. I am extremely active I white water kayak, climb and ski,In fact it is my livelyhood and am now wondering if any of these are viable with PDS. I have a second appointment at the hospital and was looking for advice on what sort of questions I should be asking? As i say my first appointment was very brief and I feel a little i limbo at the moment. Any advice of what i shold be asking wold be gratefull. Thanks in advance Rich |
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richard manchett
IP: 82.35.56.254 Sep 2nd, 2007 - 10:45 PM |
Re: New member
Appologies I was prescribed Xalatan not Zantax, which I now know wouldnt have helped..... |
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Dave
IP: 193.62.251.16 Sep 6th, 2007 - 12:18 PM |
Re: New member
Hi Richard, I wouldn't have a problem with any patients who are newly diagnosed carrying on with such activities. There is no evidence that such activities influence the course of PDS or visual outcome. As for other questions, I'm not quite sure what you mean. If you don't want to know anymore then don't ask anything. But you have come to a message board populated by people who do want to know more so I guess you have questions. I'm just not sure I can tell you what they should be. If you have any concerns then ask them here or to your doctor. Dave |
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Dorothy Hannam
IP: 142.167.202.67 Sep 13th, 2007 - 11:31 AM |
Re: New member
When I was diagnosed with krukenberg spindles 20 years ago, I was advised that I should have my eye pressure checked very regularly but nothing more. Within a year my pressure had risen to the point where I had a small area of vision loss in the upper right hand quadrant of my field of vision in my left eye. I was immediately referred to a leading glaucoma specialist in Nova Scotia because of my age, late 20s. Since then I have been on eye dops or gel, currently Xalatan in both eyes at night and Alphagan left eye twice daily. Just had routine eye check yesterday with specialist and nothing has changed since 20 years ago. When meds have been changed over the years it has been because of side effects such as blurred vision and constriction of the pupil resulting in more reduced vision almost blindness at night from the gel I had to use or respiratory problems after prolonged use of beta blocker drops. Currently no side efects other han darkened iris colour which I like. Another side effect I was hoping for which was apparently possible was thickened eye lashes no luck there though. lol I was never advised against any particular activities or food/supplement precautions. |
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