Welcome to the message board forum for Krukenbergs Spindle and Pigment Dispersion Syndrome.
Here you will be able to post messages or reply to messages posted by other people... share your experiences of PDS or Krukenbergs.
Tracy's Message Board Forum
Welcome to the message board forum for Krukenbergs Spindle and Pigment Dispersion Syndrome. Here you will be able to post messages or reply to messages posted by other people... share your experiences of PDS or Krukenbergs. |
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| Viewing Page 1 of 1 (Total Posts: 5) |
| Author | Comment |
Renee
 IP: 97.97.80.251 Aug 15, 07 - 11:24 PM |
Dx yesterday with PDS
Hi, I was diagnosis yesterday with PDS. For several years I have experienced sharp pains in both eyes, blurred vision, difficuly adjusting from light to darkness or darkness to light, and have seen halos (I guess that's what it's called) of light after exercising. In two weeks I'm suppose to have a battery of test and of course the IOP. I have been given three choices of tx: do nothing, drops, or laser. My diagnosis is: Myopia Astigmatism, regular Presbyopia and now PDS My question is, I was told that those dx with PDS most often will develope Pigmentary Glaucoma as a result of the PDS; appreciate any feed back. Also, appreciate this site; all the questions and the responses. Renee 
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Dave
IP: 193.62.251.16 Aug 16th, 2007 - 10:22 AM |
Re: Dx yesterday with PDS
Hi Renee, If I understand your question correctly, you wish to know how likely it is you will convert to Pigmentary Glaucoma (PG)(raised IOP and damage to the nerves at the back of the eye) from Pigmentary Dispersion Syndrome (PDS). Early studies indicated it was as high as 50% conversion rate. But these were flawed by only detecting the most obvious (and thus advanced) cases of PDS. Modern research indicates it is more like 10% at 5yrs post diagnosis and 15% at 15yrs post diagnosis. These are averages and your ophthalmologist or optometrist will make their decision on further management based on this information and personalised information from your own eye. Let us know how your appointment goes in two weeks. David |
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Renee
IP: 97.97.80.251 Aug 17th, 2007 - 11:42 PM |
Re: Dx yesterday with PDS
Dave, Thanks for the quick response to my question. Since the exam I've been experiencing headaches (I use to suffer from migranes from a blow to my forehead)and mild pain/or pressure in both eyes; I'm not sure if this is normal, should I call my doctor? I am a jogger, biker, swimmer, have always played tennis and I love diet sodas and coffee. This new dx does not fit into my lifestyle!! I'll let you know how my appt goes, thank you all for being available/support. Have a great weekend 
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Renee
IP: 97.97.80.251 Aug 17th, 2007 - 11:47 PM |
Re: Dx yesterday with PDS
Dave, After reading several other notes, I wonder if my migranes and light sentivity is related to PDS or another dx? Dave, what do you think? |
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Dave
IP: 193.62.251.16 Aug 18th, 2007 - 1:57 PM |
Re: Dx yesterday with PDS
I'm going to cup and paste these previous answers fro other topics because this is something that has come up before. Because of this it might not answer your question completely. If this is the case, just post again. PDS does not cause migraine. The location of these two disorders is so far separated (both physically and physiologically) that it can be ruled out. It is possible, although very unlikely that the pain around your eye could be related to the Intra-Ocular Pressure (IOP) but this does not occur often in PDS or PG. We have discussed migraines in a previous post but for completeness, migraines occur when there is an electrical disturbance in the brain (normally at the back, where vision is processed). This electrical depression spreads forward until it meets the large cerebral arteries which go into spasm. This is what causes the pain and nausea. Some people notice visual disturbances before the headache, this is due to the electrical activity effecting brain function as it moves. Many people note "triggers" for this abnormal brain activity such as flickering lights or certain foods but this very variable and personal. Light sensitivity is not something that has ever been linked with PDS specifically. It can be found across the spectrum of eye disease as well as in a fair amount of people with normal vision and eyes. If you wanted me to speculate why, then I'd go to the fact that the iris is the principle point of dysfunction in PDS and the pupil (which is defined by the structure of the iris) enables a 64 fold reduction in light intensity. Hope this helps. Dave |
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