Welcome to the message board forum for Krukenbergs Spindle and Pigment Dispersion Syndrome.
Here you will be able to post messages or reply to messages posted by other people... share your experiences of PDS or Krukenbergs.
Tracy's Message Board Forum
Welcome to the message board forum for Krukenbergs Spindle and Pigment Dispersion Syndrome. Here you will be able to post messages or reply to messages posted by other people... share your experiences of PDS or Krukenbergs. |
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| Viewing Page 1 of 1 (Total Posts: 3) |
| Author | Comment |
Jean
 IP: 68.48.111.58 Jul 30, 07 - 11:02 PM |
Genetics of PDS
My two daughters, 20 and 24, were recently tested for PDS and I'm happy to report that they both had good eye pressure and no sign of pigment dispersion! My question is, when should they be tested again? I don't want to make them anxious about the issue, but I don't want to ignore the genetics either. 
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Dave
IP: 193.62.251.16 Jul 31st, 2007 - 11:26 AM |
Re: Genetics of PDS
Not an easy question. For a couple of reasons. Firstly, although PDS is most likely something you have in your genetics, it may or may not be clinically obvious or cause you any problems during your lifetime. Also there would be some question about tests. Although there are suspected genes, I'm not aware of any test for them (and how accurate it would be is debatable). So that leaves us with clinical techniques which may or may not have been performed. Ideally the following tests would be performed: Gonioscopy to look for pigment in the drainage angle, slit lamp exam to look for iris transillumintaion defects, pigment in anterior chamber or on posterior cornea and examination for iris concavity. Even with all of these being done, PDS could become apparent at a later date. You do get people presenting in their 50s and 60s (although they most likely had the disease for a while). I'm fortunate in that I don't have to consider this question. Since April, the Scottish Executive provide free eye exams for everyone once every two years, with shorter recall based on clinical need. This fits with the College of Optometrists recommended 2yr recall (although is shorter than the 3yr recall suggested by the Association of Optometrists). However legal (and payment) issues are different in the US (and even vary from state to state) so I'd have to defer to the advice given by the practitioner that saw them. And I imagine that is no help at all, as I'm not sure that you would be posting here if you were happy to follow their advice. Sorry! |
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Jean
IP: 68.48.111.58 Aug 10th, 2007 - 10:53 PM |
Re: Genetics of PDS
Dear Dave: Like everyone else on this board,I am very grateful to you for the care you put into your replies. I was diagnosed with PDS in my fifties, but I was just being cautious in having my daughters looked at now. My brother was recently tested and nothing was found in his case. 
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