Welcome to the message board forum for Krukenbergs Spindle and Pigment Dispersion Syndrome.
Here you will be able to post messages or reply to messages posted by other people... share your experiences of PDS or Krukenbergs.
Tracy's Message Board Forum
Welcome to the message board forum for Krukenbergs Spindle and Pigment Dispersion Syndrome. Here you will be able to post messages or reply to messages posted by other people... share your experiences of PDS or Krukenbergs. |
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| Viewing Page 1 of 1 (Total Posts: 6) |
| Author | Comment |
Sarah
 IP: 70.130.133.113 May 21, 07 - 5:23 AM |
just diagnosed and have questions...
Hello I was also just diagnosed with PDS and am scared. My pressures were elevated (26, 24), and I am going to be going back to the optometrist for pressure checks twice next week at different times of the day. I have been doing some research on the internet and understand that there is a connection between exercise (jogging) and PDS. I exercise regularly and do jogging and eliptical cardio. Do I stop doing cardio? Also, does wearing contact lenses aggravate the condition? |
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Dave
IP: 193.62.251.16 May 22nd, 2007 - 11:25 AM |
Re: just diagnosed and have questions...
Hi Sarah, First off, I know this seems pretty worrying but it really isn't as scary as you might think. Your pressure isn't very elevated, just beyond the top end of normal. The reason they're getting you back is that our intra-ocular pressure IOP (pressure inside our eyes) changes during the day and they want to know if they measured you at a high point or a low one. This is a good standard of care. It sounds like you are in good hands. 2nd, although they are studies that show that certain activities, including jogging, have an effect on PDS. But this effect is very small and doesn't directly relate to either PDS becoming pigmentary glaucoma (PG) (where damage to your vision begins to occur) or vision loss during PG. I'm going to copy and paste a paragraph that I already posted here that covers such exercise. I think its important to remember three things when talking about exercise and PDS. Firstly you can find iris changes in both normal people and people with PDS after cycling, which is an exercise has no impact, and iris changes do not happen in the majority of people when they exercise. Finally, no-one has demonstrated a worse visual outcome for people with PDS who indulge in exercise. Exercise has a huge positive effect for the rest of the body, far outweighing the increased risk of injury to joints, ligaments, tendons and muscle which it brings. If you have any more questions, please feel free to post them. Dave |
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Sarah
IP: 70.130.133.113 May 23rd, 2007 - 2:15 AM |
Re: just diagnosed and have questions...
Thanks Dave. I appreciate the info. Just one more question, if I may- Does wearing contact lenses aggravate the condition? I have worn my contacts more in the last year than before, and my doc said that she did not see this (PDS) in my eyes in my exam from last year. Thanks again! |
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Dave
IP: 193.62.251.16 May 23rd, 2007 - 11:13 AM |
Re: just diagnosed and have questions...
Sorry, should have answered that the last time. Wearing contact lenses can't give you PDS if you didn't have it in your genes. Nor can avoiding them stop PDS developing. PDS is something in your genes. Now does wearing CLs make PDS worse by making conversion to PG more likely? There aren't studies to address this question directly. Mainly because of how unlikely it is. The CL sits on the front surface of your cornea (the epithelium) (the cornea is the clear skin at the front of your eye). This is a long way from the back of the iris, which is the primary site for PDS. So, pretty safe to say that CLs don't effect PDS. But there is a theoretical effect of PDS on CL wear. PDS deposits pigment cells on the back of the cornea (the endothelium). This layer is very important to keeping the cornea clear and healthy and is put under extra strain by CL wear. No-one knows the effect this pigment might have but it's unlikely to be positive. So there might be a chance that having PDS makes it harder for you to wear CLs safely. But it's a slim one, much smaller than the effect you can have by following the instructions and wearing schedule you have worked out with your CL provider. Bottom line, have regular aftercare & eye examinations, follow CL guidelines and you should be fine. Hope this helps. Dave |
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Amanda S
IP: 86.134.128.190 Sep 27th, 2007 - 5:09 PM |
Re: just diagnosed and have questions...
Regarding the question about CL's from Sarah. I have worn CLs on and off (mostly off) for years but for the last year I have been wearing the day & night lenses which you (allegedly) meant to wear continually and then change monthly. I did not get on well with them at all, after the first month they irritated my eyes to the point of distraction, I was always having to take them out, and give my eyes a rest for a few days. And I couldn't get my head around not cleaning them - I am an old school CL wearer so I HAD to clean them. I would never recommend these kind of lenses to anyone. I am not wearing them anymore BTW. I had wondered if those lenses (or contact lenses in general) could contributed to having KS. I know Dave has answered Sarah's question fully but just adding my own experience. |
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Dave
IP: 193.62.251.16 Sep 28th, 2007 - 9:24 AM |
Re: just diagnosed and have questions...
CLs can not cause or make worse PDS. There is no evidence or theoretical link. The reason that so many people on this forum wear CLs is because there is correlation between short-sightedness & PDS and short-sighted people are more likely to wear CLs. Also CL examinations are more likely to find the krukenburg spindle part of Pigment Dispersion Syndrome (more in the UK than the USA). As to your problems with the Night & Day lens, I'm sorry you struggled. Anyone can struggle with any type of lens. Night & Day are a first generation (so a pretty basic lens by todays standards (3rd generation is current) silicon hydrogel (lots of oxygen through the lens allowing overnight wear). They are known for causing problems regarding their stiffness (which can cause erosions of the cornea) and lipid deposition (which can cause dryness. It's entirely possible that a 2nd or 3rd generation silicon hydrogel suits you better but you should never feel forced to sleep in your lenses. Sleeping in your lenses whatever the type increases the risk of complications. I personally only sleep in them 1 night in 6 or 7. |
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